Home with stone age vomit response supressed

I have emerged from my day of imbibing and passing fluids. I must say it was a very pleasing day all in all. There is nothing more relaxing than being cared for and waited on hand and foot with no nagging sense of guilt, after all I could not exactly nip off to Costa – although some hardy smokers are to be seen in the carpark with their tripod wheely things . I suppose I could have gone to Costa but I was pretty embarrassed just walking through the hospital waiting room, like some harbinger of ‘this could be you if your diagnosis is crap.’  The tripod wheely thing really is the ultimate badge of poorlyness even more than a wheelchair in my view. It elicits a kind of – ‘oh God what’s wrong with him, must be really bad’ sentiment. At the most I had two bags on my tripod my friend across from me had four and his had protective black bags over them, like monks hoods – we competed as to whose tripod communicated nearest to death. He won.

The drugs do their work over the next three days basically destroying cells in order that new ones can emerge – unfortunately the primitive part of the brain assumes that you have eaten a mouldy  or some icky stone age sabre tooth kebab and accordingly induces you to puke – not realising that the kebab has been given intravenously and puke as much as you like it aint going nowhere. So I have three days worth of primitive part of brain switch off vomit reflex drugs. I also have to inject myself in the stomach once a day with what the nurse described as a tiny needle. I would count anything longer and thicker than a petite baby’s eyelash as not tiny and this constitutes at least two drawing pins in length and a strand of capellini pasta in girth. I don’t relish it at all. She was worried enough about my preparedness to cope, to suggest I came into the hospital so they could observe me do it to myself. Can you imagine inflicting pain on yourself with a sharp instrument while being judged by a professional panel – no thanks. Anyway first ‘shot’ is tomorrow night. Wish me luck.

A view from the chemo bridge

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This is my view from the bridge. It’s very quiet here today but the lovely chatty nurses keep me company and lavish me with tea and quality street. I also get my lunch here – quite a picnic, crisps, cake and sandwiches – I feel like I am at Charlie Chalks – I am hoping for a balloon at the end “I have had chemo today”.

I am being pumped with stuff for 9 hours solid so plenty of time to blog. Because of the volume of liquid being pumped in one is obliged to relieve one self of it about every hour still attached to all the tubes. I have seen this in movies but never had a go myself. It’s a surprisingly free spirited process. First you unplug a couple of devices from the mains, at the back of your mind is the thought that you might A – accidentally unplug the person next doors life support, B – deflate like a punctured lilo, then you need to wrap the wires around your wheely tripod thing as the alternative is to negotiate a load of tubes and a load of wires like something from Jules Verne with the potential to end up in an undignified sprawl as you slip surreptitiously past the waiting room. Having negotiated a series of doors cunningly not designed for persons bearing a wheely tripod thing you with your voyeuristic tripod wheely thing take a leak or a dump. However during said process the machine that pumps stuff may sound it’s alarm. The effect is an instant curtailment of urinary flow and thus the commencement of a vicious circle –

A little while later – I am now on the the heavy duty poison and feel completely stoned – not bad – very good indeed! I have just conducted an interview with two charming medical students while under the influence – oh dear – I hope I did not go on about God or vintage telephones. Very interesting chat, at least for me. The cyclophosphamide is my usual chemo but this mega dose has produced my usual Lucy in the Sky with Diamonds symptoms – it seems that almost any drug induces euphoria in me – aren’t I lucky.

Something to set the stem cells flowing

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Sadly, I gather that the stem cell gathering process that starts tomorrow does not lead to the potential for a new me – wrong sort of cells. I quite like the idea of popping back in 1000 years time to see how things are going, although what I have at the moment seems unimprovable (strange word) so coming back in 1000 years only to be disappointed that things aren’t as good as they were (arghh what is the future pluperfect historic conditional) is not so desirable. The future will have to make do with my telephonic vocal mausoleum complete with a computer voiced version of me produced by my incredibly kind and staggeringly clever friends at Cereproc https://www.cereproc.com/ . I have yet to realise its full potential, but by way of a demo here is a recording of my voice (recorded) and my voice (computer generated) dipping in and out of a poem written specially for the box (see if you can tell who is who) – just to be clear this is an in progress rough demo (with a number of tech issues) and does not show off the potential of my new toy – but to be doubly clear and for those ignorant of computer generated voices, most of the sentences spoken have never, ever, been spoken by me, they are spoken entirely by the computer reading the text from the screen – impersonating me. Many pauses and quiet bits please listen on hifi or headphones.

As a special bonus you can now see live video from the inside and from the outside of “Marge” here – https://gravityisahat.co.uk/index.php/marge/ if you are very lucky you may see a visiting punter, although spiders are still the most enthusiastic subscribers.

…and as a final offering I have installed an Asterisk telecoms server at home with which I hope to produce some more interactive versions of the ‘me’ voice but for now it just has a test message with a Becketian/Hawkings piece I wrote for two characters with the same voice – Dial 01904 215445 (normal geographic charges) or VOIP 0904 87 290 (no charge) At the moment it will only accept one caller at a time – very early days, very big how-to book.

Please note – all the above systems are subject to complete melt down – the most common reasons being; me messing stuff up or our frequent power cuts.

Got that off my chest – now what’s next – ah yes 2016

Hurrah next week I start two weeks of treatment to harvest stem cells. I shall be quite ill.

In case I die, unlikely as it is not a dangerous procedure at all, but as death by some other means – excessive sloth, excessive gobbiness, assasination or excessive consumption of parma violet chocolates – made in York and unsurpassed in the canon of great choccies, is a distinct possibility, I thought I would supplement the well known ten commandments with some more of my own, updated to take into account my whims and changes of resolve. BTW – One of few things I find unacceptable about Jeremy Corbyn is his reluctance to change his mind – this is a dangerous characteristic he would do well to moderate. There is nothing like a good U-Turn to command my respect – only complete monsters are ‘not for turning’ and we don’t want anymore of those. Showing unassailable resolve only pleases the sort of nits who think the second word war ended in our favour because we had a leader in Winnie who showed resolve, conveniently forgetting about things like the Russian Front, American cash, the weather and luck.

While I remember – I have redesigned my main page to make it easier to access my wisdom – personal, professional and poetry – go to www.gravityisahat.com  to enjoy my many fruits.

A little navel gazing follows –

I apologise, I guess I really am a pompous old git now. No that’s not it, really – I just like being perverse. I promise I do actually really like most people, nearly everyone actually, but there is something about certainty, about believing stuff, that really rattles me and makes me want to shout at people and hate them. I can’t accept the idea that anything is beyond the reach of ridicule and debunking. Nothing is sacred, absolutely nothing – I could really offend (but I wont) by listing the things, people, ideas that are subliminally designated by the Appleton set (model for many other similar ghettos) no-go areas when it comes to a good arse kicking – I was recently reminded by  friends of a few I have already targeted that can be safely repeated; poppy day (the biggest changer of my blog), being charitable, social responsibility, earning a living, knowing stuff, doing stuff, owning your own house, sending birthday cards, jacuzzis, reading books, – seriously would you dare go to a friends house for dinner bearing a half decent bottle of prosecco from Waitrose and pronounce “Actually I encourage my children not to read as I can’t be bothered to read those poxy boring kiddie books with them.” – all I am saying is, that this view,  along with any other contrary view imaginable has more power to disrupt, to cause change, to entertain and to puncture complacency than the self congratulatory remarks we (especially me) made as competitive middle class parents about reading the complete works of Turgenev to our children when they were two. Its also massively more fun and fun is fun. Middle class social interaction requires that you spend a good part of your energies in constructing a persona who has a ‘very little brain,’ but is not half so appealing as Pooh Bear.

Things I still really care about – no U-Turns yet

  • My beloved family and friends – without them the universe is nothing
  • Speaking my mind – being ill has empowered me – I like the ill me so much more than the well me. Sadly others don’t.
  • ‘Strictly Come Dancing’ – the passion that drives people to compete, perform and to care so fiercely – also the production standards are through the roof
  • That all gods are bad news and we should learn to do without them
  • That we need an equal gender divide in politics and all positions of power
  • My cats and the hens that live in the field – not so much the ones I eat.
  • That we could do without government all together
  • That we need a government that taxes us fat-cats to blazes to pay for
  • …the staff at the Magnolia Centre in York who look after me
  • Vintage telecommunications applied to melodrama, music, opera and sound design
  • That we don’t need borders, nations, races, genders or santa
  • I really must finish my Teddy poems and my photography project.

Things I pretend to care about

  • Socialism/politics
  • Anyone beyond my family and friends and whoever catches my attention on the BBC news – come on lets face it if I really cared I would not devote my time to poetry, melodrama and old phones
  • Cancer – I care to survive I don’t care to know or to revel.

Things I have wasted my time doing in the last 18 months

  • Worrying – trouble is I’ve done it for 58 years probably can’t stop
  • Fiddling with things beyond my capability – difficult programming requiring mathematical literacy, small mechanical items eg clocks – not got the brain, patience or dexterity
  • Following plots eg. Dr Who, Endeavour, just about anything with more than two characters – utterly impossible
  • Being nice to bigots who deserve to die
  • Being angry with bigots who deserve to die
  • Selling on Ebay – who cares about making money its only fun to spend it and buy stuff.
  • Replying to e-mails that are headed ‘Staff development opportunity – coping with stress’ – just got one and can’t cope.
  • Tracking my children using ‘findmyphone’ – really not healthy

Things I am really pleased with –

  • My gorgeous family – this sounds sickly but they are the highest of earthly achievements a little bit thanks to me.
  • My phone box – I love it and all it does for me – even when it hurt me badly
  • This blog – I think its great. Naaahhhhh!

 

 

HAPPY CHRISTMAS – late, good! bah humbug! christmas/new year tosh.

Sour and grumpy – this how I am characterized by our rapidly dwindling circle of friends – why – because, apparently, I don’t like christmas or new year. I say apparently, because it’s not an opinion I actually hold, rather it is one that has been applied to me by others. christmas, new year, birthdays, weddings, parties – all much of a muchness as far as I am concerned, like any other day of the year when you are obliged to do something you don’t want to do, like washing up or emptying the cats litter tray. Not exactly awful, but certainly not special, just occasions when jolliness is obligatory – but really most people would rather be reading a book, walking the dog, watching telly or sleeping. It’s the element of obligation that pisses me off. Why do we have to say ‘Merry Christmas’? It certainly does not make me merry to receive such vacuous banalities why should I give it. Same with ‘Happy New Year’, pulling frigging crackers, giving gifts, eating food, sitting together, talking, laughing, breathing – tiresome obligations!

So much more fun to give a gift when you fancy, to party when you fancy, laugh because its funny, talk and sit together because you like each other and like to watch the same thing on telly. To say ‘have a great day’ because you want someone’s day to be great, not because on December 25th you must say it,  because everyone else is, because Dickens fans say it should be so, just because a baby was not born 2000 odd years ago on that day – HAPPY CHRIS’s CHRISTMAS! I love it.

PS. And I make no concessions for the ‘joy of wide-eyed children in the morning when they run down in their pink and blue jim-jams.’ The only childhood Christmas I remember finding even a bit special, was when my Nan gave me a gun with a real revolving magazine and bullets that had to be individually charged with gunpowder caps. A meticulous but worthwhile task with many misfires.

Newell’s – no Noah needed

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No we have not been deluged. We are cut off only so far as not wanting to drive through about 6 inches of water in case we break the cars, otherwise we have been fortunate. The bad flooding has been in the city centre and we feel sorry for the people who live near the Foss as normally it is protected by a big gate thing. This time that had to open the gate so water from the Ouse (the big river in York) flowed into the Foss (the little one) – result slightly less damage to those near the Ouse but very bad for those near the Foss. Poor them. Our stream which is normally about 3 foot wide and 6 inches deep is about 100 yards wide and 6 feet deep. See above –  Exciting for us, miserable for others.

 

 

Amyloidosis results, Sandi and the Archbishop

I am very pleased to say things were good at the Amyloidosis Centre. Despite the fact that my numbers are progressing away from good, they are progressing slowly and there are no clinical manifestations. In other words my body is coping well. In fact all my crucial organs are coping well particularly my heart, which I gather is a bit important. The Amyloidosis spread has been arrested and it sits pretty around my liver which is none the worse for it. I don’t have to go back to June but in the interim there will be some further discussion about treatment options. They seemed pleased I was going to have the stem cell harvest.

The highlight was that I was seen by a young female Italian doctor from Bologna University. The oldest greatest medical institution in the world dating back to the 13th Century. Bolognese doctors were ridiculed in the commedia del arte and in the scripts for a whole bunch of Renaissance plays – usually on the basis of their incompetence, honesty or virility. In my pathetic efforts to flirt I explained this to her, but it must have got a bit lost in translation as she didn’t laugh.

Had a lovely and expensive meal in Hampstead. The restaurant had seen the likes of Hugh Laurie, Bono and whoever Charlotte and Lewis are. It was Italian great food and wonderfully non creepy waiters, who didn’t keep saying “is everything alright for you?”

While in the scanner I listened to the fabulous Sandi Toksvig who now represents the Women’s Equality Party, on Desert Island Disks – terrible music, great person, amazing party followed by Justin Welby the current Archbishop – I must say, having been a big fan of Rowan Williams, who really could have talked me into taking holy orders, this new bloke is a right plonker. Blimey what an establishment figure –. Mother related to or worked for Rab Butler and Winston Churchill, Eton, Cambridge, Oil industry, finance – God – nothing against establishment figures except when a) they prevent the LGBT community being treated equally (marriage) on the basis that other bigots in the Anglican Church wouldn’t approve and b) when they answer to the question – if there is a god why Ebola? is that people should trust in the love of Christ. I am sorry but what – what – what does that mean other than I cannot think of an answer so I will spout a cliché and hope for the best. Pathetic! Get rid of the second house if nothing else to get rid of the bishops and certainly this fella.

I think we were driven down by either a Buddhist or a Hari Krishna chap and back up by a drummer in a church gospel group so despite my constant moaning at God or the gods I think there might be a conspiracy to confront me with really nice people of faith just to undermine and make me feel bad about my personal bigotry.  Both drivers were excellent company and clearly kind people. Why do nice intelligent people so often have lashings of the god gene.

Weeing in a bottle and a Christmas morning poem

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Today I wee into a big bottle all day and all night. This process reminds me that I am a machine that needs fuel and expels exhaust. Not sure if that is earth shatteringly significant but it also reminds me of the artist who uses his own blood for his art (above) – frozen congealed blood. It is said that Nigella Lawson when married to Saatchi Allowed one to defrost in her fridge by mistake .

Unlike said artist, rather than capitalising on my meat-like humanness I am preoccupied with how to transport said waste inconspicuously. You don’t really want to walk along the street with a big bottle of wee as it is so easily mistaken for a well known brand of industrial drain cleaner (identical bottle, identical colour, provided you have not eaten beetroot) – to confuse the two while not disastrous would be counterproductive and somewhat ironic. (I know all this because I have perused the shelves for drain cleaner when we had our drain crisis last summer. “Look”, I said, “there is my wee in B&Q”. I don’t know if my readers remember said items, but at your grans you used to see toilet roll covers that were either poodles of pricesses – I am seriously tempted to put one of those on my Christmas list.

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( is it just me or is there some sort of coincidental synergy between the two images in this blog post)

I am doing this as homework for my exam at the marvellous National Amyloidosis Centre tomorrow. I missed my last exam in the summer because I chose to hurl myself from the dizzy heights of a step stool – not even ladder really – just three steps. Since then my monthly numbers have been in a slow but steady decline toward ‘not good’ so I expect them to recommend more treatment before too long. As this is a certainty with my diseases I worry not a jot as there is absolutely nothing I can do to modify this trajectory.

I am back to churning out poems www.fleeting.eu:82/wordpress/ – the quality betrays how easy I find writing poems, they are nearly all unedited, I am too lazy to go back, but I should – no who cares! I enjoy it just as much as fiddling with the phone box and associate composing and programming. I cannot recommend it enough as a way of offloading and entertaining – oneself I should add. I feel forced to use the hateful word cathartic. Yuk yuk cliche cliche .My poetry readership consists of just three people – my unbelievably loyal sister (much too complimentary but I love it), my beloved wife (slightly devastatingly honest, thus a tiny weeny bit dispiriting) and my sons girlfriend (student on the masters Creative writing course at UEA – same one Shakepeare did – arghhhh! Fool that I am)

Here is my Christmas morning poem, so that all my blog readers may enjoy are rare insight into my heroic tussles with my muse. Btw The really hilarious thing is how often my poetry site is a target for hackers from all round the world – should I be flattered or fearful? Perhaps it so bad that Anonymous has vowed, as they have against ISIS, to take my site down.

Crying into the light I woke to silence.

Then….
My ears popped
And…
I heard her first words fall like brown pears drop.

Then…

My mum Mary.
Sweet and blue as a baby boy
Licked me with black lips
Scratched me with straw
And fed me her shitty smells
And cough candy breath.

So…

Warm as a slipper I lay and bathed in her gaze.
Her eyes, egg wet
Her nostrils wet with green
Her breasts wet
My bed wet.

Until…

My mother’s snout spoke steam.

And …

I replied –

‘Moo.’

 

Why didn’t somebody tell me

I look back a year or so and I have to admit I am more than a bit embarrassed. I seem to have been revelling in my new found power to publish and be dammed (why didn’t somebody tell me), mouthing off in the most objectionable way about anything – mainly stuff I didn’t know anything about. The ‘newsy’ topical political stuff I wrote about is particularly cringe making. I feel as though I accidentally uploaded my teenage diary together with my teenage pants, it was so full of misplaced enthusiasm for myself and my stupid, stupid thoughts. So whatever happens, in my new state of greater caution and self awareness and acknowledging as one must the heart crushing sadness of the event, I will not talk about the Paris attacks – except to say – and I think I have to – if I hear one more commentator say that’s it’s nothing to do with religion I will self flagellate and crawl with bleeding thighs to the top of whatever hilly hump I can find in the dire flatness that they call the Vale of York. It has everything to do with religion. Religious belief is the safe harbour for the deluded, the desperate, the angry and the lonely. It simplifies and codifies, what to think and how to behave. It encourages tribalism and the suppression of free thought. Until a few sensible religious leaders stand up and say – ‘look actually, this is partly our fault – we are a right bunch of plonkers.” I will remain in a state of insurmountable catatonic outrage every time I turn on radio 4. That is except for hearing from the current Archbishop of Canterbury, who I gather may have lost his faith after witnessing the Paris events. Good for him! of course it makes no difference whatsoever if he has or he hasn’t it takes a truly enlightened nation (not some bloke wearing a cornflake box on his head) like the French to stand up for secularisation but if any of those killed in the stadium were my children I would curse the government and the people for being so brave. Let’s all cow tell (cow tail makes more sense but I think it’s wrong) to the hypocrisy that drives religion, that way we might survive the next ‘Take That’ gig. As @thetweetofGod says “I give up. You’re on your own. Good Luck.”

Now where was I – are yes my new found caution and self awareness.

I now have a date scheduled for my ‘stem cell harvest.’ January 19th – 3 days after my 59th birthday – I have an opera DVD Charles bought me at the ready as there are several 4 hour sessions of complete stillness and no weeing. The name of the process sounds a bit like a new healthy breakfast cereal but is not nearly as much fun as Alpen. The process involves a heavy dose of poison which for some reason encourages the stem cells to be produced. I suppose your system hits panic mode and decides that the only way forward is to make a brand new Chris as the old one has clearly had it. I believe I have to self inject – yikes! I pride myself on not being squeamish and now having bragged about this I am stuck with a bogus superhero reputation among the nurses. I predict the dismantling of my pedestal ( falling like a bronze Saddam) when it turns out that I cry and puke like a baby when forced by macho pride and nurse Richard (my favourite) to impale myself. I really don’t mind needles wielded by others but self stabbing is like making yourself sick – something I have always admired in others but have managed to avoid so far, even after food poisoning in Macao ( when in retrospect I should have followed the advice of my sadistic costume designer – you know the one who left me to burn in a hotel fire – have I shared that story?).

My return to work has been very pleasant indeed. I am very lucky to have such supportive colleagues and a supportive institution. Some of the students remember me and seemed quite pleased to see me. I must say I like them as people. I find the whole student / lecturer status game completely unecessary but if we are allowed to just get on and work on interesting stuff together without all the requirements to fit in with ill informed educational edicts from government, its a great job. Government and hierarchical management ruin everything. As I have said just one or twice before let’s hope one day they all bog off back to to Salieri’s temple of mediocrity where they belong. Long live student power. My phased return is very gradual indeed, and I am grateful for this as the driving is still a bit taxing, not mentally, just a bit knackeringust on the muscles.

I have reconsidered the opening piece for the phone box and have written something less bizarrely out of the blue than originally planned. Why I still maintain its important not to defer to your audience, leaving them in a state of complete bewilderment, as if the event is not bewildering enough, seems pretty dumb,not to say arrogant. This is such fun I cannot tell you. It’s a bit like having a full orchestra to play with after spending years with just a banjo. I just hope I don’t make a hash of it . Then again that prospect is what makes it fun.

Talking of fun I am envious (something as a rule I don’t suffer from) of a dear friend who has a new puppy and my niece who has a new flower/coffee/gift shop. I love new starts – in a way I have had to make one, no bad thing, but I don’t think I will ever stop looking forward to making another one. To be honest when we had a dog I was a terrible owner and I would not be happy about all that walkies nonsense we misguidedly think dogs need – just let them out to run around town like they do in some place in Portugal – never mind this ritualised dog work-out in stupid green wellies with a yellow safety flash jacket and a virtuous smile yuk yuk yuk. – down with ritualised anything, say us dogs. Bite all the doggie walkers, free us from our leads and long live strays!

I discovered something really cool yesterday. In the 19th century while there was the big patent battle over Bell’s electric telephone system some enterprising folk designed and built string telephone systems. Yes they really did operate on the same principle as the tin can telephone. The string was actually very taught steel wire – tight as a guitar string and held in place by bolts and spacers. There were techniques to make it go round corners and it was said it could achieve a range of 4 miles although it was usually used for short distances. Apparently strong winds would cause it to sing and rain caused it to patter and rattle. Snow and ice would stop it working all together. These inventions were around for about 10 years before the electric telephone took over. Ohhhhh to find one of those. Here is a picture

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Think I am going bonkers

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Maria has just finished decorating and as you can see I have added a new fixture and fitting. My obsession with the telephone has reached new heights and they are now all over the house including this A/B box in the kitchen. It’s from the 1940’s (updated in the 60’s to decimal currency). Ignore the Western Electric crank phone, that’s another story .I have yet to find a phone to go with the coin box or the bellset to fit inside it (No. 33) that could take years as they are pretty rare and somewhat sought after. My eventual plan is to simulate a manual exchange by connecting it to the old switchboard in my office, that now works like a dream.

So in future, to place a call, visitors to our house will

1. Pick up the receiver causing the buzzer at the switchboard to sound and the dolls eye to drop
2. Either Maria (putting on her best brief encounter tea lady voice) or me (in drag) will answer “Operator. What number please?”
3. The guest will request a number and Maria or I will instruct them to enter 2p’s and shillings to the correct amount. We’ll be able to check that the correct amount has been entered by counting the gong and bell strikes made by the two different coins (these coin boxes had a microphone installed isn’t that just brilliant, what if you lost count or were tone deaf)
4. We then dial the number and listen for an answer
5. If the call is answered the guest will press button A and the money will drop into the cash box. If there is no answer then they can press button B to get a refund.

What a delight this will be for our guests, who as well as enjoying our sparkling company and conversation will hopefully have gained valuable insights into the mid century telephone system in the UK.

BTW – plan to harvest my stem cells going ahead much to my surprise. Store for a rainy day I suppose.