Azimuth?

My neighbour next door has given me an astronomical telescope he has never been able to set up. I have spent the day trying to work out what all the knobs do and learning some new vocabulary eg. Azimuth? I just managed to focus it, upside down, on a tree branch in the garden, not exactly a revelatory celestial discovery but I am going to call that sufficient progress for the day. As a kid I was very keen on astronomy but really only from the point of view of the mechanics of the telescope (especially enjoyed cleaning it) and dreaming about alien invasions targeting all teachers – (I also made a wooden tripod for the telescope which my Nan praised very highly comparing it to something my grandad could have made (he was a great maker). Praise was something she didn’t do and it really stuck with me- I still feel proud – even if she was a dreadful old bat) As for proper astronomy I was too lazy and dumb for the boring hardcore maths and geometry and suffice to say I still cannot be bothered to figure out that bit.

A theme emerges.

My commitment to anything important, or lack of it, is a feature of my life that I will probably regret on my deathbed – if I can be arsed to bother to regret on my deathbed – let’s hope I am too morphinated to regret.  

So, I am in the process of leaving the Labour Party, they don’t make it easy. I can’t really say why I want to leave, or I could but it would just be for bogus reasons designed to sound good but aren’t really true. The truth is I don’t know why –  I have just gone off it. I have gone off ‘causes.’ I don’t think I am a cause type of person anymore. Feel free to criticise, call it giving up or getting old but just now I feel unexcited at the thought of being a member of anything worthy or serious so Momentum and the Humanist Society are next for the chop which leaves only membership of Curries PC World, Blockbuster and a coffee club – a free coffee every 10 – at some long forgotten coffee place in Scarborough. I’ll keep that one.

Yep it’s nearly September/October, my most hated time of the year and I am making Herculean efforts to stave off the grumps.

I have explained the September thing in previous posts, but at the risk of being boring it’s simple – darker, colder, wetter, winter, SCHOOL – the only compensation is better TV but even the new season of ‘Strictly’ just serves as a reminder that it’s darker, colder, wetter, winter and soon you will be stuck inside watching TV on Sunday dreading school the next day,  trying to elicit cheer from dancing celebrities you have never heard of.  

Going back to school was always a massive downer for me (sometimes lurching towards the clinical) and even now my heart goes out to anyone imprisoned by compulsory education confined for 12 years with classmates you don’t like, and teachers who don’t like you. Rest assured ‘young school aged person reader’ whatever some old Tory codger (who went to a school where they wear boaters) or well-meaning liberal education reformer (who went to a school where they teach foraging) might say to you, all school amounts to is is a sentence to be served out, hopefully without being beaten up or having your imagination drained out of you like sump oil from from my gold ford cortina my friend Jonathan sold me after it failed its MOT –  it is absolutely not ‘the best years of your life.’ If possible, find a way to bunk off. My preferred escape was orienteering classes (designed to help us audition mor effectively for service in N.Ireland I suspect)  in the course of which I would orienteer home for a banana sandwich and a Jimi Hendrix tape telling my mum we had the afternoon off for revision. “What revision?” She should have cried but she was much too nice and always pleased to see me. She loved me even when I was a bolshy teenage git skiving off school.

I am just getting to the end of a delightful few weeks of annual leave where my significant achievement has been to relax quite a bit and not obsess about a project. That said I have managed to shift the mental block that has been inhibiting my bass playing practice such that I felt I was letting myself down. I really used to enjoy playing in the family band but then both my boys got to be very good at playing all sorts of instruments and I stayed really bad at one, despite trying really hard and so I became despondent and I kind of packed up and sort of sulked  – but now I am back reenergised  – still a dreadful musician but no longer sulking  – the secret is to do very very little practice, 20 minutes is quite enough, but do it regularly! Also set realistic achievable and modest goals, not I will be the next Ray Brown in a year. Embarrassing though it is to report, I started first day of the holiday by learning where the notes were on the bass fretboard – ok I should have known that already but I didn’t. Once that started to gel I used an app called IReal to practice hitting the root note of the right chord while a song was playing. Went through a big chunk of the Beatles catalogue which was a joy in its own right. Had to slow some of them down but never mind I muddled through. So while I will never ever master walking bass, (something I have always wanted to do – it’s so cool and my composer best mate wrote an opera that centred around walking bass lines) it requires musicianship, taste and a quick brain (so forget that). I can now more or less hit one root note per chord in a jazz standard or Beatles song and occasionally provide a bit of rhythmic variety – that is as long as I have the chord chart in front of me and I don’t get lost in the repeats and whatnot. Ok it’s not much but it very satisfying and I am pleased with myself.

While on holiday we met up with extended family which was lovely and very kind of them as we obliged them to travel stupid distances just because we didn’t know the geography of southern England. Just because Deal is in Kent does not make it close to Tonbridge Wells Chris! I am lucky to have a not boring family that I don’t see enough of but the traditional big do’s where we all meet up on mass don’t do it for me and the last big one for familial ash scattering was marred by a dramatic, sudden and scary bout of appendicitis (not mine) and a general sense of weirdness and overwhelment on my part. Seeing them in small groups this time was just great. It’s easy to forget that family beyond those you partner up with or make within partnerships (ok that sentence is total rubbish as I try to extricate myself from the accusation of old fashioned morality – when I wrote it it read …’family beyond those you marry or make within marriage’ which I must say worked better)  are important and aren’t just for Christmas, weddings, christenings, birthdays and all that tiresome ritual crap that gets on my nerves as, loyal reader, you well know.

Yep I am succumbing to the September grump

But I am not pissed off to be back at work. I will have to do tons of prep, make loads of new videos, learn lots of software and support lots of student who have been derailed during the last year but I like the teaching even remotely so tomorrow I am intent on cracking on with enthusiasm.  

Research wise I finished a draft version, rough cut, of a short film on the phone box over the summer. It’s not terrible but needs lots lots more work, so this time I am returning to work with something to offer up to the gods of research which I need to do after a long period in which I have contributed zilch. Which in university terms is the equivalent of giving up trying – double cross xx for effort – call yourself an academic – huh!

The precise nature of my return to work is a bit uncertain. To Zoom or not to Zoom? I am waiting for a verdict from my consultant on Tuesday on the risks and then further discussions with the Uni. The Uni have been exceptionally supportive, and it seems I can continue to teach from home if that’s what’s safest, so we will see what he has says and take it from there.

In general I feel ok on the treatment – taste buds are still the only noticeable side effect – energy levels a bit low and at certain times in the cycle I am daft as a brush and make loads of stupid mistakes, really can’t think straight but it’s all perfectLy tolerable and the results seem positive. The visits to the Royal Free will kick off again in November (stopped for 2 years) so that’s good as they can do a more detailed analysis of my current state and make recommendations. A close member of Avani’s family lives yards from the Royal Free so I may have someone to talk to if, as we suspect, Maria is not allowed to come with me. It’s not that it’s particularly scary it’s just a lot of hanging around and entertaining oneself waiting for results. She’s a doctor so she can shed to some light on some of the bizarre tests I have to take that I have never really understood the purpose of. Loyal readers may remember the trotting up and down the corridor test and then reporting whether you are more or less tired than when you started trotting – duh yeh! Who would say no?

Tuffin 21 & 22

Tuffin 21

Across the road from our house is a white house. Someone has covered the bricks up in stuff and then painted it white. I don’t like this as I prefer to see the bricks all the way up to the roof. Our house has bricks at the bottom and then tiles. This is also bad but paint is worse. The main thing with paint is you have to keep painting it again when it’s dirty or flaky so the house is always fading away and I prefer strong things that stay the same. The people that lived in the White House  didn’t have any children so some new people have moved in with children and the old ones  have gone away to live in a bungalow by the seaside and then die or that’s what mum says. She seemed to think this was quite sad and I agree because surely it would be a lot less trouble to die in the White House and not have to move your things and have all that curfuffle. The lady and the man next door died and they didn’t move and now there are two new old people next door who look like they will do the same thing soon. The new people across the roads children are both girls which means all the children in the houses near me are girls. This is a blow because although he was weak Andrew was stronger than Jill and could almost jump from six stairs up. The two girls are twins but you wouldn’t know because they are not at all alike. I am suspicious that they are adopted. I have heard that adopted children are very deceitful because being adopted has to kept secret. Mum says that I must not ask them and I must not think that but then she was still sad about the people dying in a bungalow so she was feeling a bit sensitive and short.

When I grow up I won’t die or move to a bungalow by the seaside

Tuffin 22

They are not adopted I asked. They didn’t mind in fact they thought it was fun to pretend they were. They said that their real parents were German and had been captured and put in prison so  their new parents rescued them and brought them here but their old parents were planning to escape  from prison and take them back to Germany to live in a castle which had caves and a lake that you were allowed to play in. I told them about the black swimming pool and they said they would like to see it and that one day I could visit them in Germany to see the lake and swim in it.  They are called Jean and Judith. I said it was a good idea to have the same first letter for their first name because then their initial would be the same so when they want to be more like twins that would help. They told me that there middle names did not have the same initial but they would not tell me what they were because they were German names so they were secret and hard to spell.  I think J and J might go higher up my list than Jill as Jill doesn’t speak German and they can. All my girl friends have a name beginning with J. That makes me think that J is a girlish letter but then John is a very popular boys name and I have a friend at school called Jonathan. Oh yes I go to school now.

When I grow up I want to change my name to Josh and learn German

Di’s statue is dreadful dross – Tuffin 20

I don’t know about you folk but I am unable to sleep, breathe, eat or function normally  since seeing the new Princess Diana statue. I have long ceased getting wound up about the big issues, survival of the planet, survival of the Labour Party, survival of me (that was all quite embarrassing in retrospect) but this atrocity has tipped me over the edge and I have to rant.

RANT: It is quite simply the worst piece of public art I have ever seen and I looked at loads for my Bridlington project.  The Artist should retire now and do something he is suited for like decorate Hallmark cards from the 1970’s, illustrate 1930’s children’s books or do those posters outside churches to come to a coffee morning. Sorry I do a disservice,  1930’s childrens book illustrators we’re working within the somewhat mawkish sentiments of the time and doing it rather well – this chap has dug up everything that is ghastly about the style – cute kids, mother/Madonna figure, maypole motif, horrible dress, someone else’s face (my vote is for David Bowie) and what seems to be a particularly finely wrought and enormous cowboy belt  to which he had added his own and ‘those brothers’ [I have nothing against them personally but I think we can now be confident that they don’t have an artistic bone in their bodies] particular brand of dreadful dreadful quasi religious kitsch – Sorry I do a disservice –while I despise all religiosity I love kitsch – this is beyond kitsch it is simply indescribable rubbish – lets take it down – melt it  – throw it in the canal and give a proper artist a chance to do something worthy of her reputation and tragic death – I thought the water garden thing was excellent – statues stink anyway – but really…….

Give it the commission to Tracy Emin and see what she comes up – at least it might look like a piece of 21st century art. The photo series below relates to her Cancer and is brilliant. I wish i had done something like it but I am not brave enough.

Ok, got that off my chest.

Busy planning/making a short documentary about the phone box. Learning about photography and film making as I go, so I have a very low expectations of quality. George is mentoring. I have been persuaded to rejoin the university research world and hopefully this will be part of my contributions. Other than uni teaching prep – [l guess the documentary project will contribute to that as well – additional skills and whatnot] – which is still quite intense, everything else has gone on back burner including Tuffin. I have 4 weeks holiday end July and August so we have plans but they are very very flexible to accommodate any last minute Nonna set backs but I want to use some of the time to complete the documentary and revitalise a few other projects which have fizzled out such as my CR-Apps but I also must get out and about… hmm (see below for bike news) .

Treatment goes well. Just started 4th cycle – hopeful for reduction in dose. Tastebuds not so bad this time – side effects generally less annoying. My wakefulness for three nights a week (this is night one) is no fun for Maria so I find a warm spot somewhere under the railway arches and kip there so as not to disturb her. Aside from the damp, the thieving and the violence it’s fine. I slip back in the morning to prepare her breakfast and tend my wounds

We have bought a second folding bike so we can go off on leisurely car jaunts and then take off free as birds – as long as the road is flat (no hills) and pothole free – airfields would be nice – very titchy wheels – oh and a convenient convenience, somewhere to get a snack – oh and a bus back to the car. Full size bikes are such a pain to stuff in car – likely to do back in loading the car never mind having a crash and falling in a ditch.

Maria continues to do things with apricots and exercise her new found passion for paper engineering. Separately I should say. She is incredibly neat and patient, qualities I don’t share, and she’s really good at it, if a tiny bit obsessive – says he.

Tuffin 20

Next to the station and to get to the wood is a narrow road. We are allowed to go down the road all the way to the donkey but no further as then you get to the shooting range where the army try out machine guns and bombs. I really want to go there but Dad says that even though it was in the war there still might be bombs lying about. I once heard a few bangs coming from there but no one was blown up or shot so I think it’s safe as long as you are careful and sensible. On the way to the donkey the road is so narrow that if a car comes you have to climb onto the bank to let it pass. The bank is full of snails and Jill is afraid of snails. They are really big ones the size of the crowns I have in my coin collection that the lady next door gave me before she died in bed. I sent her a thankyou letter but she must have been dead already because when dad went to make sure the house was ok it was still on the mat. On the way to the donkey we once found a mole in the middle of the road. I picked it up but it bit me so I dropped it. I pretended it didn’t hurt but it did and it bled a bit so I kept my hand in my pocket. After that we kicked it with our feet over to the bank to stop it getting run over but it didn’t move again so we left it alone. I think I killed it when I kicked it. The donkey is very muddy but we take carrots for it so it comes to the gate and puts its head over when it sees us coming. Everyone is afraid of it biting them except me. I like animals and they know that. Except moles perhaps but I think they are blind like the man at the station. The donkey has a really fat belly like Rosalind and thin legs like me. It’s not having a baby though as it has a big willy like Brian has when he is in the woods.

(There are lots of pattens in that bit – I must make a list later)

PS -The donkey’s best bit is it’s ears that are big, not sticky out like mine but sticky up. I wonder what donkeys hear like. If wonder if they can hear other donkeys making noises a long way off like submarines can. After all this one is all on its own and is probably lonely even with us there so it might like to hear another donkey even if it can’t see it.

When I grow up I want to explore the shooting range and find a bomb or bullets and I want my ears to be less sticky out.

Phew Nonna OK! & Tuffin 19

Long silence the result of some serious worries about Nonna now happily passed. Not Nonna – the worry!

Poor Nonna has been in hospital with a whole bunch of serious stuff. We were very very worried but after being pumped with antibiotics and believe it or not bicarb, she is back at home and happily prone in front of her Italian telly, happy as Larry. I won’t go into the details she can’t really give her permission (her understanding of the inter web is nowt, nulla) but suffice to say it was a life and death scenario and the latter seemed at first, to her doctors and to us to be a highly likely outcome. To say that because she’s approaching 90 (we had a birthday  party planned in just a week or two) and we should be prepared and possibly resigned to her never coming home was utter cobblers, we wanted her home and better, she is not an Eccles cake or a cannoli beyond its sell by date to be chucked away. Happily she agreed and despite dire predictions, much to our surprise and I think the doctors, her numbers returned to the  sustainable dreadful she has been maintaining for months now and she was discharged. She is beginning to be able to eat again without throwing up, can just about stagger with her walker to her essential services, has carers (who she really likes) help her dress morning and night, Maria makes her lunch, even I  managed to make a passable bowl of pastina when Maria was at work, manages a really complicated diet of new, changed and withdrawn drugs that makes mine look meagre and most importantly is so jolly that it makes us jolly. So now back to the status quo for however long such statistically improbable stability can be maintained – we can all breathe again and to some degree get on with our lives and think again about Tuffin and telephone box art that I just could not focus on while she was in such dire straits.

So here is latest followed by my own health update which is thankfully much less dramatic.

Tuffin 19

Andrew and I have a new game called hanging teddies. We both have teddies but because we are old now we don’t need them. Mine was given to me by my mean Nan, who my mum hates. She is not mean to me but she is mean to the family.  It has short fur and when you turn it upside it growls but it sounds like a cow. Andrew’s has long fur and is quite small and worn out. It doesn’t growl or anything. We attach string round their necks and dangle them out of my window. Because of the porch we can’t swing them very far without them bashing into the walls but we can balance them on the porch roof so it looks like they are going to do suicide  like the lady up the road did only she set herself on fire. The people walking up the road from the station saw us and smiled which is strange because I don’t think its funny. Andrew’s bear was weak and it head and body tore apart like it had had its throat cut. Andrew said the bear belonged to his mother and her mother so she would be cross. I knew about sewing from Mrs Friends class so I showed Andrew how to stitch the head back onto the body just like the boy at school had stitches on his thigh after he fell on some railings. I wanted to do the hanging teddies game again but Andrew said he was going home. Andrew is very weak like his Teddy.

When I grow up I want stitches.

My numbers are still improving so the dose of steroids has been reduced. I feel not too bad most of the time,  bit knackered and the food thing is annoying. Fizzle out in the evening but mornings are good and productive. I could definitely sustain this regime if it has to go on beyond September perhaps forever but I must admit I will miss experiencing  nice tastes. I didn’t think it was important, which it isn’t, but I do spend many a moment gazing longingly into the fridge trying to conjure up anything that doesn’t end up tasting like hoover left overs. I am still on pickled herring, tomato’s, apples, porridge with cream, plain pasta with butter, liquorice, tea and decaf coffee (thank goodness), fried bread, eggs and asparagus. Now looking at my list I don’t know why I am complaining but having been previously such a fan of most foods, provided I didn’t  have too cook them, such a specialised menu does seem a bit sad. I am hungry pretty much all the time which is also a new experience for me, I have lost weight, not a great deal, but my emaciated chicken legs are now even more hilarious when framed by summer wardrobe of three quarter shorts, short white socks, and my Clarks elasticated slip ons, (designed to make shoe putting effortless) -, sadly my belly persists resulting in over reliance on my non existent hips to support said shorts such that upon returning from the hospital a few days ago my shorts dropped to my ankles upon exiting the car much to Maria’s heartless amusement.

Oh one other important thing – Lisa and Arts gig scheduled for July has fallen foul of the Covid restrictions and is rescheduled for December 1st – Your tickets will still be valid – what a bummer though.

Important announcements – Lisa Marini and Robert Stewart

Lisa Marini is performing at Green Note with a new line up and some great new songs. Supported by Tall Ince. We are hoping to go depending on – well you know all the boring health stuff.
Book your tickets at once here
http://www.greennote.co.uk/production/lisa-marini-2/




Robert Stewart our next door neighbours son has just had his first novel published.
You can hear all about it in this interview with Anna King on BBC Radio Gloucestershire



or grab the book – currently sold out! here https://www.amazon.co.uk/gp/product/1800462905/ref=ppx_yo_dt_b_asin_image_o00_s00?ie=UTF8&psc=1

No I am not a cancer baldy!

Bright as a button at 2 am. 

My blog stopped sending out invites to my loyal readers. Even if you don’t read this would you be so kind as to tell me whether you get the e-mail. Ta. There may be back issues you missed if you are a Tuffin and like to read in chronological order.

Wednesday night is my sleepless night. It’s a bit “tiresome” if I have something important on Thursday morning but otherwise I don’t mind it. Not sure how it will work if I need to drive to Hull in the morning but I will address that when and if it is an issue. This chemo cycle has been less yucky than the last mainly because the back pain is much much less. I am not very mobile but I have managed two walks (hateful, hateful) and two bike rides (bearable). Out with the zimmer! Get quite tired after lunch (but then I always did), sense of taste is shot nearly all the time – I can eat with some pleasure – tomatoes, pickled herring, yogurt, coffee, porridge, chilli con carne, plain pasta or aglio olio. I am sure there are other things I have yet to discover but staples like bread, biscuits, chocolate, chips, Honey Nut Cornflakes and Angel Delight have all to varying degrees lost their appeal! Strangely bread is particularly revolting unless soaked in olive oil. Chocolate is almost gaggable still. I can’t say I am looking forward to a lifetime on pickled herring but I am going to pretend I am in one of my Scandi Noirs, a hunting lodge, a well-thumbed copy of Kierkegaard discarded next a fiord, the Northern lights pick out the shape of headless corpse floating in the outdoor spa while back at the station  the dysfunctional detective approaching retirement (me) finds solace in pickled herring and expresso.

Today I get my hair cut. I have decided to go short perhaps very short. The thought of revealing my flappers to the world gives me genuine angst so I may bottle it. If i proceed it would be the first time for about 50 years that the full extent of my flappers is revealed. I hope to keep my chopped off locks to decorate my death mask. That implies it will be a ‘live mask’ unless I leave instruction in my will and a YouTube tutorial for someone to do it. The other reason going suddenly short may be embarrassing, is that people may think it’s a halfway house chemo cut, sort of a attention seeking overture for going bald. Hmm… we’ll see.

Nonna is full of herself because the doctor who came to give her a cortisone injection in her knee,  praised her mental sharpness and general positive attitude, saying that none of his other 90 year olds were as active and positive as her and were still living alone looking after themselves. She is beaming with pride so we want him back for a twice yearly morale boost jab to accompany the knee jab.

Maria is making significant progress with her piano playing (enforced). There is much less banging on keys and swearing. It really sounds good at times. We need a new piano! It cannot be tuned high enough so the match between recordings and live playing is excruciating. She doesn’t like the relatively posh £400 ish digital keyboard we have here on loan from G because of the action, so if we get something it will be a trad second hand upright. G got a brilliant one in Norwich. Angela as it was yours will you be sad if we get rid? We will in a way. Anyone in the family want it? Transport will be very costly and won’t be worth it.

Class teaching is over for me so now I embark upon the marking journey. Everybody’s least favourite activity. Many of us now provide video feedback so that’s a lot less arduous and the students prefer it but however it’s a bit like day one working as a newly employed pot washer in a hotel kitchen and you discover the last one was fired for not bothering to wash any pots for a month. Piles and piles of stuff to be scraped, sorted, washed, dried and put back on the shelves and you have yet to pick up the first grubby little spoon caked in dried-on Black Forest gateau. I will pick up that spoon on Monday

I have an emerging plan for my next live broadcast from the telephone box. I believe I have some good ideas but I know from experience a good idea does not necessarily lead to a good outcome. So watch this space. There is no scheduled date – phew – so I will broadcast when it’s done – i got quite stressed by the last self imposed deadline.  I think I can build some more CR-APPS as I have found some more images. I have decided to address the copyright issue if it occurs. After all, if it does occur that means the idea has made an impact sufficient to stir up the copyright gate keepers and I can call that a success. As the CR-APPs are free I can’t imagine anyone will care. I need to market them and my knowledge of social media marketing is zilch. Avani do you want a commission? I was thinking of starting with a Tik Tok video?

The cats are all steady at the moment. Bobby is on the balcony as I write (time has passed since I started this post) scraping to come in. He arrives at first light and sits patiently waiting till we get up. Ohhhh to have a cats capacity to not register or worry about time passing. He just waits with no appreciation of it being for 4 seconds or 4 hours. When we let him in he is as unappreciative of prompt responses to scrapey paw or neglectful responses. One meow, one stretch, where’s my breakfast?

Emergency update. Vince has just raided the balcony, a rare but catastrophic event which usually results in Bobby emptying his bowels then and there. Vince had him trapped in a corner such that when I opened the door to rescue Bobby it necessitated him getting closer to Vince in order to access the open doorway. There was no way I was going out onto the balcony in my socks cos it was wet so I had to speak to Vince firmly and get him to back away – not a concept in his repertoire of moves – Vince tends to go forward at a terrify velocity when encountering the incontinent tabby. Anyway after much negotiation peace was restored and Vince’s fur which had exploded into his full 1980’s Dallas big ginger hair look retreated along with Vince. Meanwhile Mitch sat in his bath chair and spectated.

 

Tuffin 11

Swimming is good for my body says my mother.

I am more interested in the black pool.

We ride our bikes to see the pool. The water is black because the pool has been left inside the house for years and no one can get in. To see it we have to look through the windows and they are covered in moss from inside so there are only a few places left you can see in. One day you won’t be able to see in at all, so we make hay while it’s still possible. We all agree it’s brilliant, better even than the stagnant pond further back down the lane where if you throw in a stone in it throws up a slimy green tail, opens a black hole then closes it down again and disappears. The black pool still has chairs around it like people will come and put their watches and clothes on and that makes it feel more like they may be in the water it’s just we can’t see them because the moss is in the way. If people are in the water they must surely be in another worm hole because we can’t hear them and the water is very still. I wonder if this is the source of my worm hole.

Jill and Andrew want to go but I could stay all day. They prefer swimming. I might have to move them down my list and find someone who just likes looking to move to the top.

When I grow up I want to just look as well as invent.

Maria’s day v Chris’s day

So instead of going on about all the silly arty nonsense that gives me pleasure and purpose, in the spirit of Tuffin here are two lists – Maria’s typical day and mine (while on chemo – see postscript)

Maria’s list on the days she doesn’t go to work

  • Bring me a cup of tea in bed, make coffee
  • Feed 3 cats – much cat wrangling required
  • Shower
  • Stand in mouse guts in bare feet
  • Replenish coal for stove add mouse guts as additional fuel
  • dress, make-up, contacts etc
  • Bring me toast and coffee in bed
  • Open Nonna’s front door so that the two cats who don’t try to kill each other can get in for snacks and Nonna love
  • Listen to me moan about illness from bed over Alexa ‘announce’
  • Visit Nonna
  • Do some of the necessary for Nonna – cleaning, sometimes lunch prep later – help with bathing – wash hair – unpleasant potty toilet business
  • Prepare open fires
  • Collect kindling and fill coal buckets (after all my poorly back!)
  • Online shopping for us and Nonna – I would do ours but I am not allowed, – grievance 1
  • Washing machine stuff – I  don’t know what exactly as I have always assumed a laundry fairy did it
  • Put clothes out to dry in sun
  • Take clothes back in from hail
  • Tidy up and vacuum fresh rabbit fur tails etc
  • Remove the previously missed desiccated cat kills, vomit or just occasionally poo
  • Change cat litter as response to above – the little sods like their bathroom to be ‘cilit banged’ or they wont use it
  • Empty bins we have 4 indoor kitchen bins
  • Move outside and shuffle the 4 different coloured outdoor dustbins we have + Nonna’s four
  • Feed cats again – this goes on all day
  • Chop wood with chain saw – her favourite thing –  think she imagines its mine or Nonna’s head under her ferocious blade
  • Loads of garden jobs including cutting grass or tending the tomato farm next door
  • Walk down road to get eggs
  • Put away online delivery for us and Nonna  (after all my poorly back!)
  • Make my lunch (naturally)
  • Maybe some ironing
  • Practise piano (bang the keys a lot and swear)
  • Prepare work for school eg recording backing tracks (a little bit hilarious because of above)
  • Respond to emails from Tiger mums
  • Do an online safeguarding course again – third time lucky with the acronyms
  • Make me a refreshing cup of tea
  • Listen to me moan about my illnesses
  • Visit Nonna again
  • Listen to her moan about her illnesses
  • Do Nonnas washing up
  • Lock Nonna in
  • Realise Mitch is also locked in at Nonna’s
  • Find Mitch hiding at Nonna’s
  • Lock Nonna in again
  • Feed traumatised Mitch who doesn’t like enforced house moves
  • Wrangle the other two cats (can involve chasing Vince round the kitchen table a few times with Bobby hissing in the b/h a door in the background)
  • Water a million outdoor pots
  • Make my dinner (now late cos of above – Grievance 2 – prioritise Chris not pot watering)
  • Collect my lap table and cutlery and present a delicious home made dinner
  • Receive praise from me (naturally}
  • Watch my choice of TV (actually that isn’t true I can’t let that go makes me sound like a lazy misogynist tyrant)
  • Go to bed annoyingly early because she is tired!
  • Read Woodhouse to escape – I wonder why.

My list

  • Wake up (phew) – be awake already (poo)
  • Take pills and Eat breakfast
  • Moan about my Illnesses
  • Add trousers and jumper to my three day usage bed underwear thus completing my work wear in 14 seconds
  • Go to my desk /Faff about with e-mail/push paperwork hither and thither for a couple of hours – sharpen pencils – bash blackboard rubber – drink milk from tiny bottle with white paper straw – cry internally most of the day – oops i digress that was primary school 
  • Eat lunch then well deserved nap
  • Sometimes teach the few students who attend online sessions thus avoid marking for the fifth day
  • Buy something online to make me feel better and less stressed about the build up of marking
  • Obsess for the next 5 hours about some ridiculous arty project until my arse grows numb
  • Moan about my illnesses which now includes numb arse
  • Get pissed of that the ridiculous Arty project doesn’t work
  • CLEAN UP THE KITCHEN (yep this contribution has to be writ large- (after all my poorly back! – what a martyr))
  • Eat delicious dinner, much telly, pills
  • groan my way into my bed in now approaching 4 day usage bed underwear
  • Not sleep
  • Write this

Ps. Of course when I am not on chemo it’s a different story – of course!

 

still a bit yuk but moving on

my first course of the new chemo finished a week ago – this morning i start my second. i had a good moan to the consultant about the side effects and he said people do end up packing it in or going onto a reduced dose – i am not going to do that as its really not that bad and if it works I will be on a reduced dose in 6 months time so i am moving on.

Most significant news is that I have finally published CR-APP1 (TIE) -(10 years of thinking time to produce THIS CRAP). The fact that it doesn’t work on new Android phones is being addressed as we speak, in collaboration with my lovely, patient, daughter-in-law, the only person in my circle who has a fancy, new Android Phone. Please go here https://unuseless.gravityisahat.co.uk/ if you want a peak but read below first otherwise you might not get it and I will go down in your estimations and feel sad

In keeping with my approach to Telephone Box Art I suspect this piece of App Art will confound my readership. It is based on the Japanese concept of ‘Chindogo’ http://chindogu.com/ics/ which is a design method that celebrates the notion of the ‘Unuseless’ (neither useful nor useless). There are 10 tenets for Chindogu –

  • Chindogu must be (almost) completely useless. …
  • Chindogu must exist. …
  • Chindogu represent freedom of thought and action. …
  • Chindogu’s uselessness must be understood by all. …
  • Chindogu are not for sale. …
  • Humor must not be the sole reason for making chindogu. …
  • Chindogu are not propaganda. …
  • Chindogu are never taboo.

Thus the app called TIE – does only one thing, has no options, no settings, no features, no personalisation, etc, etc etc none of the things an app should do – but it is still exists as an App. I plan to produce a series all doing one simple action displaying one word against a black background that translates to an additional, somewhat absurd repurposing of the mobile phone. I am using 1980’s photo romances as the visual hook. If you happen to have some in your loft I am desperate for issues of ‘Feelings.’

‘Feelings’ back cover – maybe there is only one issue and I have it

I can get ‘Blue Jeans’ in abundance but the copyright for Blue Jeans is owned by DC Thompson who own the Beano and I suspect they wont let me use it. The copyright to ‘Feelings’ is more likely to be negotiable as it belongs to a defunct untraceable publisher.

In addition I have been trying out brutalist website design. https://brutalistwebsites.com/ I suppose some viewers may regard this as ugly bad web design but i have been a fan since the early days of web design when brutalist design was the default define style cos not much more than ugly was possible. It is now a trend – a response to all the glib prettyness and vacuous coolness of so much off the shelf web design these days.

Tuffin 10

Dad took me to Boots to get the saltpetre and the sulphur. Saltpetre is potassium nitrate and white. Sulphur is called flowers of sulphur and is yellow. I also bought some sulphur sweets in all sorts of colours. I ate them in our car on the way home.

Gunpowder is easy to make as long as you are patient and sensible. The recipe is to grind the three ingredients up using a pestle and mortar. I had one as part of a chemistry set I had never opened as it was obviously a toy rather than real chemistry. It had a picture of a boy on the box. He wasn’t wearing a tie so it was likely he was just playing not working. That’s no good at all! “Things worth doing are doing work.” Play is for babies and children. The boy looks a lot like Andrew so I took a note to talk about it later with Jill before we opened it up to Andrew. I think Jill might like the picture but she can’t have the chemistry set as it has one or two ingredients labeled poison – another present from Auntie Margaret.

Another surprise is that Gunpowder does not explode easily. Hitting it with a hammer is as ineffective as hitting waxy radio bits and rose petals. All those shows where people throw barrels of gunpowder down mountains and they blow up and cause an avalanche must use special gunpowder because I only managed to throw up a coating of grey dust across the bench that got muddled up with the dust left by dead grandad or the sawdust left by my dad when he made a seed frame.

Now I need a number two very very badly. Mum says it was the sulphur sweets, but I can’t see the connection. No time for a list.

Lisa Marini back on the road again – hurrah!

TOMORROW NIGHT

A note from Lisa

Hello,

How have you been?

In case you haven’t come across my social media posts, this is a quick note to let you know that my band and I will be live streaming a FREE gig from Peggy’s Skylight in Nottingham tomorrow (Friday 30th April) at 8pm/ UK time.

If you can’t make that and would rather come and see us in person, we are very excited to announce that we will be playing a gig that you can actually come to at the Green Note, Camden on Sunday 11th July 2021.

Tickets are limited so get them here whilst you can:
https://www.greennote.co.uk/production/lisa-marini-2/

For tomorrows live stream:

Tune in at 8pm UK time through Peggy’s Skylight YouTube Page:
https://www.youtube.com/channel/UCmF0JEdICrzXSkiqo_GXJfg

Or through their Facebook Page: 
https://www.facebook.com/peggysskylight/live

For more info on the event and to donate you can visit: 
https://peggysskylight.co.uk/events/lisa-marini/

Thank you so much for sticking with me. I’ve been writing a lot of new material and I can’t wait to see you again.

All my love

Lisa x

yuk yuk yuk & tuffin 9

Check out the side effects of just one of my drugs in the video above – needless to say now that I have read about them I have them all! The highlight is – “take this drug and you might get cancer” – well bugger me I hadn’t thought of that! something else to add to the worry list.

i am sorry i keep going on about my treatment but when it isn’t pissing me off it fascinates me. What a funny way to treat a disease, to poison the person with it and make them ill and susceptible to other diseases. Its quite medieval like sticking your head in a beehive to get rid of head lice – yes there really was something like that – must be true cos i saw it on TikTok (btw must delete it again – addictive).

8:00 am drug breakfast – even the water is drugged – no scary ones for a week though

Today I begin my week off the the two cytotoxic drugs so i hope by Friday to be back out clubbing with Maria (family dont know this every Friday night we like to do the Micklegate run in York finish off by groping some fire officers and puking up our donners in the back of an Uber) until it all kicks off again on next Wednesday after seeing my consultant for a checkup to make sure my system is coping – it is i’m pretty sure.

When i get cheesed off i remember Lisa’s friend who has been on an even more extravagant gift basket of daily drugs for years and years and just gets on with it – but for now, for me its quite new, to start each and every day with a ritual swallowing routine that lasts several minutes after which you feel a lot worse than you did before you started – which is fairly bad after a night of pissing and not pooing or vice versa. Perhaps it would help if i had a sacred space where this event could unfold (make it a bit more special like getting that wafer thing from jesus – ‘communion’ its a word like epiphany that i can never remember) and maybe some Roman house gods to guide me, a few candles, incense, even humanist prayers (is there such a thing somehow i doubt it) accompanied by humming or whale noises or Enja but just gulping them all down and trying not to gag on the steroids – (aaaahhhh – they are disgusting if you get one under the tongue and it starts to dissolve)

-sort of trivialises the idea that these innocuous little babies sealed in their little silver cradles are my life force – without them i am a gonna. I feel a poem coming on – — – — — — — – – – nope its gone…

YUK – the most noticeable side effect, other than the constipation which is now under control (phew), is the taste bud decimation. i actually spat a sausage out while watching ‘Call My Agent’ (grab on netflix ‘toot sweet’) – i don’t think i have spat something out with such ferocity since primary school orange sponge – i actually tasted like one imagines a partially embalmed slug to taste (flabby/firm and chemically) – and it was an expensive Italian sausage from a posh deli – what a waste. i plan to leave this story as is but it is a tiny weeny bit of a lie because maria believes the culprit to be bad defrosting hygiene rather than my taste buds but that takes us off topic and spoils the story – but yeh its likely they were on the turn. We may have been ‘infected’ by Nonna quaint country ways – she sticks uncooked italian (the same incredibly expensive) sausage in the fridge and leaves it to dry out for a few weeks so she can eat it like salami – if Maria find its she bins it and tells her off – but i think some sneaky amateur meat curing maybe going on – Uncooked pork, ‘matured for a month’ in a slightly damp old fridge, ingested by a 90 year old who has no functioning chewing teeth and a continuous gippy (putting it mildly) stomach is probably not in the manual of health eating for the older person, but we apply the philosophy extolled by the pharmacist who queried the combination of drugs Maria was collecting for Nonna (apparently a dangerous combo) until Maria said her Mum was nearly 90 at which point the Pharmacist congratulated her on her longevity pronouncing ‘if she can get to 90 on that combo then she’s doing brilliantly and nobody should mess with that.’ so lashings of class A drugs for tea for Nonna.

for me most things taste bland (which is fine) – salt and sweet perception seems to have disappeared a few things are really gross – biggest loss chocolate and sweeties both of which maintain the textural features but taste a bit they might be trying to be good for you because they contain a chocolate substitute made from deodorised cuttlefish extract and the sort of sand you keep your pet lizards in. Side effect of the thalidomide – WEIGHT LOSS – i wonder why? But thats a bonus i suppose.

Tuffin 9

The shed was once grandads. He is dead with coughing all his life. I was a bit sad as he was an inventor like me but I was glad because we got all his tins as well as his shed. I don’t think grandad liked anything other than things and wrestling. I know that because he left one hundred and forty one tins called old Virginia with different things in them. Some of them have just one thing in like a door bolt or a chain but others have hundred of little things like staples or washers. Some things are sticky and some are dry and chalky. Although he has painted what they are on the side of the tin I had to ask dad what a grommet was and he said be careful. Grommets don’t look dangerous but I suppose you never know. Swallowing would be fine as they have a hole in them, you could still breath. I suppose you could put one on your willy because that how they make dogs stop being bad so it might work on boys. It didn’t work at all on March so you might end up going on holiday and never coming back.

I know about the wrestling because we watched it together on Saturday afternoons and it was the only time he didn’t cough because he was too busy shouting. Once he shouted so hard he kicked his bottle of beer across the carpet. After that the room always smelt nice but grandma said it made her sick and that grandad made her sick and that she would sit in the kitchen, but she stayed in the sitting room and watched the wrestling with us which was nice because she let me lean across her lap like a dog.

I miss my dog. I wish he wasn’t dead.

When I grow up I will bring my March back to life and my Grandad but not my Grandma. I may have to turn on the worm hole again.