I am falling to bits

The thing about chemotherapy is that if you are lucky it works – in my case brilliantly – but whether it works or not it likes to leave an impression. So I am peeing blood, my heart is pounding like the flying Scotsman and I am as stoned as Jimmy Hendrix. So an infection and heart issues – great! Basically I am falling to bits while being rebuilt. My consultant is clearly very pleased with the results, concerned about the side effect but basically of the view that I should stick it out – so I am. At present I have trouble walking to the garden gate (were we to have one) so going to Hull and teaching is, somewhat with regret, out. Needless to say this is really tough on my already overstretched colleagues and I do hope to provide some virtual teaching if it can be set up.

All in all an encouraging consultation but I still feel like a proper 60 year old, you know the type, Grammy leg, dodgy heart, always moaning about their illnesses – I’ll have a Pale Ale.

Marmite and Coke and head in the shed

I have entered a short story into a competition. The subject has to be food and drink. The prize is £10,000 and it is to be judged by Mary Berry and Phillip Pullman. This is my entry.

 

ARGGG – just realised it breaks the rules of the competition so I have had to take it down – sorry – it is brilliant

so instead…

4:00 am Monday – My room is part of my therapy.

This is to be my first and last self help guide. I shall adopt a circumspect and slightly smug tone.

As you know I have cancer and when you have a serious illness it is suggested that alongside conventional treatment you should also retain an open mind about complimentary therapies. Many of these are provide by the NHS for free and they include things like Raiki, aromatherapy, foot massage, head massage as well as talking therapies and group therapies. I had a go at a couple but didn’t get on with them at all so I thought it might be useful to share with others my own alternative therapy.

I will call it shed therapy

I am very fortunate because I have all the normal necessities and my beloved family around me to keep me sane and happy. I would add to this one more thing that has been fundamental to my mental health since I was about nine years old, a house big enough so that I can have a dedicated me space. These spaces are my rooms, or if you prefer my sheds

My sheds are two spaces but they operate as one. The physical space is as you would imagine a room in a house while the metaphysical space is a room in my head. Hence head in the shed (meaning lost in crazy self contemplation) I hate the term man cave for the former but if it helps you dear readers to think in such crass terms then be my guest – a man cave it is. Since the age of nine the physical space I create is orderly, clean and tidy but exceptionally full of stuff. The order is apparent only to me. For example without counting them I would say I have something in the region of 50 drawers in my room of various sizes all containing critical bits and pieces mainly of a technical nature. Most of my furniture is on wheels, the idea being that I could wheel it all out and create a rehearsal space, an idea long since abandoned. I have two scaffolding poles the length of the ceiling, put in when the room was being built that allow me to trail cables across the ceiling and hang anything I like from above, speakers, lights etc. The room has a concrete painted floor so I can freely drill and burn and solder and do all those other man cave things. It is on the ground floor in the centre of the house next to the kitchen so household hubbub is a comforting background buzz. It is paradise.

It forms the perfect analogue of my head. All the things that fill my head fill my room and vice versa. If I am dreaming of theatre I have theatre models and props, if I am needing music I have all the players and instrument. If I need to write I have pens typewriters, rulers, staplers, guillotines, Prit and drawing boards. I have hundreds of tools, gazillions of cables, all my lighters and phones. I have a work bench a vice, a magnifying light. Filing cabinets, books and records. For nourishment of mind and hand I have absolutely no need to go anywhere else. My creative life is completed and rounded by these two spaces. I cannot imagine why, given this incredible abundance anyone would need to travel more than 50 metres. I hereby declare that I would happily live out the rest of my life without moving out of my sheds except to watch telly and barbecue in the summer .

I cannot recommend it enough.
So feeling blue, stressed, or just plain poorly get yourself a shed and pour the contents of your head into it.

That other crap is over. Now, my birthday!

Now that the poxy meaningless ritual called Christmas has past it is time to address the next poxy meaningless ritual called my 60th birthday. Hitherto this is traditionally scheduled for January 16 but my delight in marking the day 365 sleeps from the day I was born in 1957, lost its potency in 1958 when I woke up in my cot already bored with cooing parents relatives, cake, cards, pressies and similar crap so so soon after my first mice pie. THUS MY BIRTHDAY IS RESCHEDULED TO AUGUST 1st. Anyone who has the presumption to acknowledge the 16th will have their legs broken and any cards presents or goodwill will be shredded – so SO DON’T? THIS IS IN EARNEST and PERMANENT!

Yes I have done it by deed pole.

RULES for my birthday on AUGUST 1st

1. Decent gifts are encouraged. These should be of an appropriate price and quality- I would suggest a minimum spend of £50 but this is negotiable. Strictly no charitable donations- you may form small groups to spend the £50.00 Check with Chris whether this is OK.
2. Cards on paper with first class stamps are OK but only this once, thereafter they are banned for the duration of my life.
3. Any other form of ‘card’ will be liquidated unread.
4. Witticisms on my age will amount to insults and will reflect badly on the senders capacity to write or to think 
5. NO eating things, drinking things, flower things, soft things from Marks, funny things or anything I don’t like.
6. I like Mamod stationary engines, lighters pre 1960, phones pre 1950, murano glass, lucite items, gold eg sovereign rings, well chosen books, music of any kind, vintage photographs, well designed gadgets (care with this one) a Landrover from the 60’s any kind of American car pre 1970, clocks, almost anything that isn’t new and needs fixing, speech sythesisers for the 1980’s or earlier, dogs.
7. You will all attend my birthday on August 1st which will be a barbecue in our garden. You will bring tents and stay the night. You may also bring drones and kites or hot air balloons, RC aircarft. Children are allowed but must be silent in my two hour poetry reading and accompanying contemporary dance performance.
8. Pets are actively encouraged as they are so much more fun than human relatives and friends. They should NOT be kept on leads but roam free in the equisite anarchy I call my birthday bash ‘ total freedom for Chris and everybody else in chains.’
I am still hellish dizzy but otherwise very well indeed. Every time I stand and up or move I have to lean on something solid. This creates an impression of someone about to throw up, clamouring for attention or auditioning for Richard III.

We had a superb day yesterday during which time I actually talked myself hoarse on my favourite subject – Other people’s creative projects that I can interfere in. Lisa is exquisitely patient with my excessive enthusiasm to meddle in her creative life – I am so excited!!! I had the most thoughtful gifts from our four children and our friends ( yes we have four children now) I believe I have ever received, everything was brilliant and so so generous. You wait till you see me wearing them.

That’s its for now. I do actually love you all xxx

Back in the illness bubble

I am back and the important thing for me is to just accept it. No good getting fed up as your face caves in and and your bladder and your sweat glands explode better to just just laugh at the absurdity of a night spent rewriting Beatles albums on a hallucinatory loop. It’s a fascinating place. First of all I am fully aware that I am hallucinating, always have since a child if my temperature went up, despite awareness I cannot accept at the time that the hallucination does not have some sort of useful and logical purpose. As an exercise I shall attempt to write it down.

I have been here before – raging temperature
If so why didn’t they put it in the right order (they refers to amorphous medical experts)
Ah yes I will put this one first before that one, that’s what they said
Ahi that’s better, comfy now
(A few minutes rest)
Wake up
Have a wee
Repeat until morning

For anyone who has not experience this let my explain it is not fun. It is like being stuck in a Christopher Nolan film but with no guns to get you out.

I have never sweated so much ever, I get through 3 tee shirts a night. It’s a vicious circle cos as you sweat you need to drink creating more fuel for the sweat glands, and as you drink you need to wee thus you are effectively acting as a bed bound water recycling plant.

Yes I am now officially a post human again. Kept alive by technology and whatever resistance my body can muster. The technology is amazing and I am so grateful and happy as it gives me reasonable prospects, a good spirit, continuing joy, life, life, life – it also makes you feel physically ughhhhhh… And I make no bones about that – dizzy very, belly ache, brain addled, tired, achy, fluey, pissy, non pooey, hungry but kinda special and kinda amazing ( I repeat myself) amazingly lucky.

So the right wing and capitalism has finally won and we have no middle man between money and power. Trump is the golden calf and should rightly enjoy being worshiped on behalf of the thousands of years invested by similar minded less golden calves, whose only aspiration is to be as golden as him. Why has this all come to pass now . It easy in my view. Since 911 capitalism has been afraid. Afraid it was going to have to start to think about giving back some of what it has stolen, afraid of the chaos that the wrong sort of religious bigotry would bring about. It’s reaction is like our ginger cat, when it gets afraid it pisses itself and its hits things. Capitalism lashed out, blamed everyone other than itself and settled on a few particular scapegoats that made easy targets – refugees, religious minorities, Mexicans, disabled scroungers, poor people etc. All the time stirring up fear in order to divert people from the real problem which wasn’t fear it was greed. The greed that created a word of such staggering injustice that no adjective exists to describe the staggeringlyness of it all. Stamping on one group of murderous arseholes will not get us anywhere until the current group of murderous arseholes are deposed or admit they got the whole thing wrong. With the likes of Trump in power I guess that we may have to wait a bit longer yet and that means more Berlins. What a mess.

Talking of messes. Why do I keep mucking my websites up? Well it goes like this.

I get to the end of a long day of project tinkering. I am just about to retire to The Gillmore Girls. I see something temptingly easy to fix – a misdirected link – I click to fix – bang – something else happens unexpected – by now I am tired – I try a few stupid things in desperation as the title music for Gilmore Girls swells up – more unexpected things – bang bang bang – I have broken the whole thing and no way can I remember how to fix it.

Later that day I get a very nice e-mail from my niece who has been trying to access my site – “is the problem at her end” she asks benignly – I want to kill myself for my own stupidity.

At the end of this blog is the technical explanation as to why I get confused and keep messing things up.

The Strictly finale was truly amazing. Production values and choreography through the roof – why oh why do people sneer at light entertainment – in my experience it blows most serious art out of the water – name me one degree course in light entertainment? – now name me less than 1000 degrees in drama. Time for a change?

This tiresome distinction we make between high a low art really has no values unless you are a snob. High art derives influences from popular art and vice Versace ( leaving that typo). It always has. Monteverdis operas took inspiration from popular songs forms and bawdy comedies, Mozarts from the music halls. I quite dislike people, yes I really do I have concluded, who make this distinction, who pride themselves on only listening to a certain genre of music – either way is just as bad, oh I can’t listen that posh stuff or I can’t listen to that its all just noise . For the sake of your ears and your brains just open them for once. Popular culture and posh culture are all the same – just great noise. There is no such thing as art art is just stuff just like you and I are stuff.

X
TECH BELOW

• My sites are run from my own servers at my house on a fixed IP address that I rent from BT
• At the time that I set them up needless to say I did not have much idea of what I was doing so I ended up with several Apache servers rather than one each one operating on the same fixed IP but from different ports :80, :81, :82 etc
• Not ideal and for sure there is a better way but too late now as I cannot be bothered to change it
• I bought the domains gravityisahat.com cancerwithoutgod.com and fleeting.eu separately without web space ( I am providing that) and then using the control panels provided by the domain sellers I direct the domains to my servers using the fixed IP plus the port address.
• At least one of the domain sellers systems does not accept ports as part of a redirect
• Thus I have to create bounce pages from the main IP to the port address
• Some browsers don’t like this
• Some mail server don’t like mail arriving from domains to which the main URL is not associated
• Any changes you make take up to 48 hours to populate across the web

HENCE THE AWFUL MESS EVERY TIME I TINKER SORRY SORRY SORRY I get so embarrassed by my incompetence. I just want you you all to get my news and I make such a dogs breakfast of it.

Its the drugs! again….

The winner = ‘Flatulence’ submitted by JAA

This is a very dull post. Sorry it’s the drugs.

I thought about sending out Christmas Cards like last year but anything I came up with seemed to be feeble when compared to the ‘Mitch with rabbit entrails,’ I sent last year. I just don’t think there is a better Christmas card lurking in my or Mitch’s imagination. You will have to make do with the delight above from the Guardian.

Caption please??

Santa came early for me with a sack load of new drugs including Thalidomide. I have already overdosed by accident which caused me to slide inelegantly off my chair onto my office floor. No damage, happily but a reminder to check my spread-sheet more vigilantly. Maria shouted at me with the love you reserve for naughty children that nearly get run over or rush to embrace a fierce Alsatian. I recognised it immediately and appreciated the verbal slapping. Well deserved. What a plonker I can be.

 

George and Avani are in Sri Lanka sauntering with Elephants and fifteen members of Av’s family. They seem to be having a unforgettable time and we get frequent pics of sauntering elephants on main carriage ways, most bizarre. Not pattable I am told. Arthur and Lisa are still rushing about. They have done a radio gig, or maybe that was Lisa on her own, anyway when I have the link I will put it up. We expect them next week and George a bit latter finally Avani after Christmas. Hopefully the odd few days in the middle when we have a complete set.

Maria DOES Christmas. I spectate and contribute literally nothing bar purchases from Amazon and tempered disdain. I am just too lazy. I love the fact that the family love it so much and it is an amazing show, but I have to confess I find Christmas quite tiresome. I love the family here, the talking, the odd pressie but all the ritual decorating endless cooking and making big is not my cup of tea. I would like people, the telly on, if pressed a trip into town for a coffee, a few good pressies and then life as normal just with everyone here for a good long stay. No Christingle, no carols, no Michael Buble, no lights, trees, CARDs – bloody hate the things, unexpected guests, delighted little children, Boxing Day walks, new year resolutions particularly diets, good wishes or any kind in fact any mention of Christmas at all.

Things I really like at Christmas include – snow, when our cat ate tinsel and it hung out of his bottom, me getting presents that are not soft, smelly or edible and preferably made of metal and wire, taking everything down and burning this years cards.

Life is good and I made it through a semseter’s teaching with a just a few odd days messed up by incapacity and hospital visits. I think I did a good job. I was an enthusiastic and , unusually for me fairly competent teacher. I have made good use of the Uni technology to make my life and theirs better, I hope. I have a really good module to teach next year which allows me to play with lots of contemporary art and new technology and I am really enjoying swatting for that. The marking is tedious and I often think the amount of feedback we are required to give a gigantic waste of time. Most students are happy with a mark and a chat – both are crucial, but an essay from your lecturer is not – so I don’t do it.

I continue to experience issues with my mailing list. I have lost track of whats going on now so apologies if you get nothing, something, many repeat somethings.

This time the drugs are both exciting me and slowing me down. The result is a slightly befuddled state. I am very forgetful and easily muddled. Hence this blog is passionless and respectable in a fairly unpalatable way. I will wind up or wind down for now .

ZZZZZZZZZ……

Ps. Did i mention that our drone lost in a tree for the entire summer has fallen down and not only does it still work, survived being shot by George with an air pistol but the pictures and videos it took survived as well!!!! I will write to the manufactures in China and congratulate them – truly amazing for a cheap plastic toy.

Royal Free Hospital adventure – pretty good really

My run up and down the corridor was a triumph beating my previous record. I have perfected a sort of swimmers turn that has paid dividends adding several crucial centimeters to my six minute walking test. Boy what an athlete!

I am going to have to endure more treatment soon as amyloids and the myeloma are getting shirty again – but all my vital bits are surprising normal and the consultant was very keen to stress things are looking good but they need to keep on top of the disease while things are looking good and not let things get worse and start knocking out organs like coconuts at a shy with a good cricketer (can’t think of a name just now – laboured joke – ah -Truman, Botham, Lilly, Thompson. WG.Grace). So we may be back to the discussion about the autograft versus more drugs but it’s just a matter of wait and see what transpires in the ‘multidisciplinary team meetings.’

So relief as ever all round.

Instead of going posh Maria and I ate at the hotel. I felt a looser cos I am a snob and believe that if you are going to be ill and spend the day surrounded by others ills you should defy your purse and eat at great expense at our usual place frequented by Hugh Grant and slightly grumpy italian waiters… but i just needed stodge and i got it!!! – steak and kidney pudding, chips, pees and eton mess for afters, Maria had lamb burger  and persuaded the kind polish waitress to give us the meal deal I had so violently declined – it being demeaning and a touch common and desperate – loosers we may have felt, but fat, billous and contented we retired to bed with Stephen Poliakov, moderate wind and incomprehension. Life is so sweet with pudding.

Can’t be bothered to write any more just now as knackered from so much lying down and sitting up.

Hubris – at last

 have done it!

I started the telephone box project about 18 months ago and since then I have been avoiding a fairly fundamental technical constraint. You see – the sound going in and out of the telephone was not really available to me, well it was, but the way it was, was shoddy and incompetent to say the least. Imagine a conversation with an IPhone, that on a part of its journey gets relayed with a tin and string telephone, before transferring back to another IPhone – that was more or less what was happening. I had always hoped that I would be able to capture both the sound input and output and manipulate them, before returning them along with my real and synthesised voice, in ways to ‘surprise and enchant.’ (still struggling with that bit). Techniques for doing so existed, but none were designed for the ‘ancient and modern’ of my set up. I was sad and frustrated but remained strong and perky.

On and off for the last 18 months I have been trying different solutions – mainly archaic hacks using solutions designed for completely different purposes. Rather like trying to design a washing machine using a cheese grater and a copy of the radio times. YESTERDAY I HAD A BREAK THROUGH. The sound, hitherto trapped somewhere down the phone line, was digitally tapped and fell into my lap or rather emerged on a screen as a stream of incomprehensible code that I recognized as instructions to other software make noise. A few moments later sounds emerged from the telephone line that obeyed the instructions on the screen – HURRAHHH! To celebrate I took photos of my notes and my screen at that precise moment and here they are.

 img_0173 img_0174 

On Thursday Maria and I are off to the Royal Free so that I can run up and down the corridor – the bit I dread most, as my macho desire to impress often exceeds the capabilities of my wheezy form to progress at any thing approaching a non embarrassing speed. The enthusiastic words of encouragement the nurse provides unwittingly transports me to a cheering Mrs Hewlett at sports day, whose kindness did not allay my sense of crushing despair as I came second to last to my best friends excusable asthma, wooden leg, weight issue, rampant unsportiness. Pretending not to be out of breath afterwards is an additional challenge met in my case with lies, lies and more lies. Do you exercise regularly? – no! – note this is a lie because the true answer is neither regularly or irregularly as any exercise makes me feel sick, dizzy, depressed and a looser. In fact I despise exercise, the imperative to do it, the people who do it, the people who talk about it, the clothes they wear, the shops they shop in, the desperate Darwinian fight for survival they adhere to, the word, the concept and whatever is bigger than concept. This time I wont lie, as my green face at the top of the two flights of university stairs is beginning to cause alarm amongst the students who are reasonably convinced nee hopeful that I will die mid seminar anyway and who by the way have taken it upon themselves to assume my nut brown barnet is a cancer wig – cheeky sods – my crowning glory has probably retained its conkerness due to years of not being cut, the product of embarrassment about my flappers (don’t get me started) that kept me out of the hairdressers chair for 45 years. Oh how shallow I am, was, still am, less so than I was.

A confession. I consider this blog and my poetry blog to be quite important. Not to anyone other than me of course but I think I can say honestly that the two together constitute consummate ‘Chrisness.’ Should anyone in the future want to grow a new Chris then these outpourings together with the products of my loins should just about do the job. I have been troubled by the digital impermanence of these items – they are after all nowt but ones and zeros in sequences that happened to make sense today but in time will probably make no sense or worst will be reconstituted as some new digital Angel Delight. Low I was sent a vision and that vision was to turn both my blogs into printable books. 15 minutes later it was done by a wonderful free bit of software, sponsored by libraries and archivists across the world and thus were two weighty problems solved – my legacy in 15 volumes and your Christmas presents – Hark the Herald Angels sing!!! Seal up your letter-boxes, lest My Life in Art by Christopher Newell should fall mightily on the mat in advance of the twenty fifth day of this month.

 

I am joking but sadly not about the legacy bit I really did not want these rambles to evaporate – I consider this to show some not inconsiderable hubris. At last I have been able to write that word – been waiting years. Like Epiphany – it’s a word I have heard but have never had the courage to use.

Family life is quiet at the moment. George and Avani’s wedding plans are afoot – big time and I mean BIG – so exciting. Arthur and Lisa pretended to have a baby – a jolly jape none of us fell for but I must admit it made me broody. The three cats – yes its officially three – still fight and wee a bit. I have concluded the Mitch the original ginger one personifies something that Wittgenstein said about a Lion’s speech – that even if we could decode it we would not understand it – it’s world view would be profoundly incomprehensible to us.

https://wittgensteinforum.wordpress.com/2007/06/13/wittgenstein-if-a-lion-could-speak-we-could-not-understand-him-pi-p223/

I believe that Mitch believes Vincent (another ginger cat) to be Mitch. Not another mitch a doppelmitch or a twin mitch just Mitch. As a consequence he accepts him because in effect he is him. I have yet to prove this theory but his placid disregard and lack of interest in his rival points to something metacatical I am sure.

Boy am I annoyed – bile alert!

 We have been living in a ‘post-truth’ media environment for millennia. To imply it is all the fault of Facebook is dumb dumb dumb. Ever since someone scratched ‘beware of the sabre toothed tiger’ on their cave door when all they had to subdue a club-wielding burglar Flintstone, was ‘tiddles the cave lap cat,’ the media, and we that feed the media, have lied, lied and lied. What greater lie is there than the nonsense contained in the Bible, Quran, Tora, The Daily Mail and all the other esteemed titles that have sought to profit from misleading the masses by spreading bigotry and lies. Trump is by comparison a mere pixie pinocchio. At least we can see him, touch him, blame him and hopefully one day someone will punch him. God is comparatively a slippery, hidey sort of fella. Never daring to appear in public, never daring to step in when things go bad, never daring to do bugger all – just standing on the side lines watching the world, he apparently created go into meltdown. What a nasty, vicious individual. If ever there was evidence for the non-existence, or if you prefer, meanness of god, Mr. Orange is it.

Love Chris xx

Ps Today I acquired my first musical lighter – yes it lights your ciggy and plays a tune while you die.

Future daughter-in-AWE

Avani our lovely, lovely future daughter-in-law (that will annoy her –tee hee) got her distinction in the MA in Creative Writing (Fiction) at the University of East Anglia confirmed this week. This is a massive achievement as UEA is world famous for this particular course – just google ‘creative writing alumni UEA’ https://www.uea.ac.uk/literature/creative-writing/alumni – Ain’t she clever!

Families eh!

So much going on I temporarily abandoned blogging for the emotional fray of real life.

Yet more pride and gush – My beautiful children are doing beautiful things.

George and Avani are engaged to be married!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

We are so, so happy and excited and really, really looking forward to the wedding party. The whole engagement event in front of family members and friends was a rom com masterclass the details of which I will leave for them to reveal.

family

Arthur and Lisa had a fantastic gig at the Jazz Café in London that was packed out and totally brilliant. The Time-Out guy hosting the event was really complimentary. Nonna’s toilet mat made a star appearance and there were plenty of loyal Bovinos, Arrowsmiths and Newells in cheery attendance.

All in all a fantastic few weeks of total joy that had no impact on the goodwill extended from one of our cosy cat family toward our immigrant cat Vince. Much despised by Bobby he now hisses at everything including us when we feed him.

Psycho cat yes but we love him nonetheless.

Families eh!

I wrote Avani and George a song