Have seen the consultant re everything. He is a bit mystified by the pain and whatnot but does not seem too worried. Basically I have to be more generous with the painkillers to keep on top of it. We asked about getting a blue badge and he was so kind because as we were sitting in the waiting room he came and very quietly said – ‘they will automatically reject any application unless we say that you only have 6 months or less to live. Don’t worry that’s not the case but can we say it?’ We agreed to the fib. I would not have relished receiving my badge with covering letter. “Thank you for your application for a blue badge. We understand that you have less than six months to live, so no problem, here it is, enjoy.”

Nothing else has really changed, still waiting to find out what treatment options are open to me but the critical thing is that there are options so on we go.