I am very pleased to report that my cancer numbers continue to decline dramatically – so the thalidomide really does seem to be working. The numbers are back to levels I have not seen since I was first treated and each course roughly halves the offending light chains. What does this mean? Well of course it is not a cure. I am stuck with these conditions for ever unless a cure is discovered but while it is held in check I am likely to be able to lead a more active life (ha ha) and not feel so rough. Of course the cancer will gradually make its way back and each time the doctors will weigh up what treatment is best to push it into remission again. I suppose repeating the same treatment is not always the best thing so it may be that they ring the changes. Who knows, but in any case I feel very grateful that it is working cos there is always the possibility that these treatments don’t – so I am a lucky bunny.
I was really sad to hear that the broadcaster Steve Hewlett had died of oesophageal cancer. I had been following him avidly and we had corresponded through Twitter. If you have not heard his broadcasts on Radio 4 they are all available as podcasts. His attitude to illness chimed exactly with mine however he was a lot braver and was facing a much grimmer scenario. Truly a great piece of journalism and a model of emotional restraint and good humour. I am so sorry for his family particularly his boys but hopefully his plain speaking attitude to his predicament made his death a bit more bearable for them. He was so free of crap it was inspiring.
It is lovely to hear bits of news from various readers. Please keep em coming. It’s been quite isolating, not being able to drive since January, not that I am sad or anything but just feel a bit disconnected from all the exciting things people are doing. Strangely I have no desire to join any of you, nor in fact to see any other of you, just knowing what you are up to is enough.